Category: Uncategorized
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Medical Haul
Thanks to everyone’s donations, we’ve been able to purchase some of Enoch’s medical needs. I wanted to keep everyone in the loop on what exactly you are supporting. Aside from any medications or supplements that are not covered by insurance, there are still many things needed to keep Enoch safe, and/or make things a little…
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1 day until admission
This morning I mourn the life that we leave, and the life that we are to enter. My dear baby Enoch, You slept peacefully in my arms last night. I woke up to you cuddled in my chest. You did not move an inch all night. You were in the same position we fell asleep…
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Emergency Dialysis
Yesterday Enoch’s kidney nurse called from the hospital and asked that we go in for labs. Mind you this will be the 3rd visit in 4 days. She asked that we stay to go over the results and to be prepared in case he needs to get admitted. They were expecting it to be bad.…
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2023
I created this website over a year ago to share Enoch’s story and keep everyone up to date on his condition. We received an abundance of love and support from family, friends, and complete strangers. We were overwhelemed to have connected with people we hadn’t seen in years, and receive generous donations from people all…
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Genetics
Our long awaited results came back from our whole exome sequencing panel – aka – our genetic tests. This was a full panel that ran DNA amongst myself, Tha, and Enoch. They found that I am a carrier of nephronophthisis disease – which is is an autosomal raecessive kidney disease leading to end-stage renal failure in…
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The beginning
I thought it would be best that I allow everyone to be able to follow Enoch’s story in the appropriate timeline. I will make this post as the baseline for how we got to where we are now. It will be long, and most of you have read this via our social media posts and…
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“Be still and know that I am God”
I occasionally find myself in a state of shock when I have RE-realizations that our lives will never be the same. I almost feel like the last 31 years of my life were a blur when I think of how I ended up in this position. Never in a million years would I have ever…
"Be still and know that I am God" 