Emergency Dialysis

Yesterday Enoch’s kidney nurse called from the hospital and asked that we go in for labs. Mind you this will be the 3rd visit in 4 days. She asked that we stay to go over the results and to be prepared in case he needs to get admitted. They were expecting it to be bad.

This morning they collected 14 vials of blood.

Two days ago they collected 9.

The day prior they collected 6.

Enoch is beyond exhausted. As if the 4 hour round trips weren’t hard enough – he still has plenty of testing to go through in order to be ready for transplant.

The Medical Director met with us and immediately apologized for all the horrible news we received during the kidney transplant conference – and being completely blindsighted of how quickly he declined in the past few weeks. We thought we had more time but he has finally hit failure.
She told us “He can’t sustain in this condition”.
He needs emergency dialysis. She won’t even give me the choice of doing peritoneal dialysis. Peritoneal dialysis takes two weeks to heal after the surgery.
She said Enoch doesn’t have two weeks.
The toxins, acid, and potassium in his body are very high.
We need to do Hemodialysis which is what I did NOT want if we had to choose.

There is nothing they can do right now. It is not safe to sedate him because his potassium is still too high. We are scheduled to be admitted on Tuesday for emergency dialysis. We have 5 days to pray that his potassium levels drop in time for him to go through the surgery. They increased his dosage of existing medication, prescribed additional, and have changed his formula. 5 days or he can’t get the surgery. If he can’t get on emergency dialysis, we may lose him.

I can’t say enough thank you to everyone who has reached out, donated, shared our flyer, and even applied to be considered a candidate. I am in awe.
As hard as it is during this time, you have all given me some comfort with knowing that Enoch is SO SO loved.

There is much more to say but I can barely think straight.

Thank you all for loving our son. If you love him, please pray for him. I don’t want to lose my son.